The DISabled to ENabled podcast
28. I started my life again… addiction free with Multiple Sclerosis. Shelley Ramsey DeJongh

28. I started my life again… addiction free with Multiple Sclerosis. Shelley Ramsey DeJongh

November 20, 2019

Topics covered in this episode:

  • First MS symptoms
  • Being predisposed to addiction
  • Endometriosis 
  • Postpartum depression
  • Being a counselor in a prison
  • Setting up a business
  • How can people with chronic illness heal? 

Connect with Shelley:

Website: https://www.shelleyramseydejongh.com/

Instagram: https://www.instagram.com/shelleyramseydejonghlpc/

Facebook: https://www.facebook.com/shelleyramseydejonghteletherapy/

 

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27. Heather and Dizzy ‘With Multiple Sclerosis you have to cancel plans and I hate that’

27. Heather and Dizzy ‘With Multiple Sclerosis you have to cancel plans and I hate that’

November 13, 2019

 

Meet Heather... 

She takes on her illness everyday alongside her quirky prehistoric knitted companion, Dizzy! She was diagnosed at 25 with Multiple Sclerosis and runs one of the coolest blogs I have ever seen - Dinosaurs, Donkeys and MS. She’s taking on the world of chronic illness - one donkey at a time. She’s here with us today. ENabled warriors please help me in welcoming our next guest, the amazing… Heather Russell-Kay and Dizzy!

 

Things we discussed in this episode:

  • Heathers first MS relapse
  • Misdiagnosis
  • Selma Blair
  • The complexities of MS
  • Can our partners help us know when to stop?
  • Dizzy’s roots at the Sidmouth Donkey sanctuary
  • What does a tattoo really feel like? 
  • Tips for getting a tattoo with MS
  • Shift.MS for young people newly diagnosed

 

Link with Heather and Dizzy!

www.dinosaursdonkeysandms.com

Facebook.com/Dizzytheddonkey

Instagram.com/Dizzytheddonkey

Twitter.com/Dizzytheddonkey

 

Join the ENabled tribe:

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26. Gina Johnson. Doctor: do you want to have a career or do you want to be alive?

26. Gina Johnson. Doctor: do you want to have a career or do you want to be alive?

November 6, 2019

Topics covered in this episode: 

  • Gina’s experience of a heart attack. 
  • Children going missing
  • What is angina? 
  • How is Angina detected?
  • Migraines
  • Dealing with your ex bad mouthing you to your children about your illness
  • The benefits of working for yourself
  • Gina’s awesome podcast - ‘Life’s valleys and mountain tops’

 

Wait till you hear about the weirdest thing Gina has ever done! (Hint: It involves a bus, a paedophile and a newspaper)

 

Catch up with Gina at:

www.Synergymindsetcoaching.com

On facebook: /ginaamjohnson

Or Insta: @synergymindsetcoaching

 

You can also hear DISabled to ENabled podcast host Jessie Ace being interviewed on Gina’s podcast here

 

Join the ENabled tribe:

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25. Ciena Rae: My fingernails just started falling off one-by-one

25. Ciena Rae: My fingernails just started falling off one-by-one

October 30, 2019

Actress Ciena Rae stops by to chat about the issues that come with being an Actress and having Psoriasis and eczema with the added pressures of constant reapplying of make up, photoshoots and close up camera shots alongside the pressures of being in the public eye.  

 

Ciena Shares her tips for other people suffering with Psoriasis and eczema and tells us about her daily routines that lead her to keep control of her skin. 

 

Also, wait till you hear about the documentary she is currently recording to help people with chronic illnesses and the advocacy work she’s currently doing.

 

We think she’s the total psoriasis BOSS. 

 

Get your shout out on the podcast by pledging a dollar and get free perks!  http://bit.ly/enabledsupport or leave a rating and review :)

 

Want to manage your symptoms without taking extra meds for free? Get your FREE digital download here: bit.ly/enabledebook 

 

Connect with Ciena Rae:

Website: www.CienaRae.com

Instagram: @CienaRae

 

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24. Chanel White: ‘There are two times I wish I just died’

24. Chanel White: ‘There are two times I wish I just died’

October 23, 2019

“You can find a lot of good things in something broken” - Chanel White 2019

Do not listen to any other podcast until you’ve listened to this one. 

Chanel keeps it real and takes us through what was like when she won the chronic illness lottery. Going from what started as ‘burnt black pus fingers’ on her wedding day to complete organ failure and being tube fed. 

 

We go into detail about how her body functions (or not) day to day and how she gets though that with a dark sense of humour and an infectious laugh. Find out why she scares medical students and why her mother in law decided to start charging medical students for photos. Also, hear about the time she made doctors hate her when she decided to go sky-diving and about that time she went riding an Ostrich. 

 

[DISCLAIMER] This episode contains too much information, feelings of nausea and unexpected stories. 

 

P.s. Bonus! See if you can catch the BIGGEST mistake I have ever made in an episode!! [Warning: includes hilarious results] 

 

Get your shout out on the podcast by pledging a dollar and get free perks!  http://bit.ly/enabledsupport or leave a rating and review :)

Want to manage your symptoms without taking extra meds for free? Get your FREE GIFT here: bit.ly/enabledebook

 

Blog: TheTubeFedWife.blogspot.com

Instagram: @TheTubeFedWife

Follow the ENabled warriors and join the tribe!

Facebook: ENabledwarriors

Instagram @ENabledwarriors 

 

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23. I did my GCSE exams whilst being diagnosed with MS

23. I did my GCSE exams whilst being diagnosed with MS

October 16, 2019

Jenny Clarkson from the wonderful blog Tripping through Treacle stops by to tell us her experiences of Secondary Progressive MS starting at just 15 years old. Can you imagine having your body go out of control at such a young age? She tells us about what it was like to get such a big, life changing diagnosis when she was still so young, even describing her experiences of relapsing at prom and having to get her boyfriend to hold her up by her arms all night so she could walk. 

We also discuss the new HSCT (stem cell) treatment that is the new treatment on the block, what it actually is, the criteria for it and what Jenny’s experiences were of it. Did you know they extract stem cells from your bone marrow?! *shudders* 

 

Finally, learn what life hacks she has built up to be able to cope with Secondary Progressive MS whilst raising two beautiful kids. 

 

Speaking of kids we also discuss what it it’s like having kids whilst having MS. Find out the hardest thing Jenny had to talk about with her children that made her totes emosh. 

 

Yes, I just said ‘totes emosh’ - i'm down with the kids. I went there. 

Get your shout out on the podcast by pledging a dollar and get free perks! > http://bit.ly/enabledsupport or leave a rating and review :)

 

Want to manage your symptoms without taking extra meds for free? Get your FREE GIFT here: bit.ly/enabledebook 

 

Connect with Jenny

Main site: https://trippingthroughtreacle.com/

Facebook: https://www.facebook.com/trippingthroughtreacle

Instagram: https://www.instagram.com/trippingthroughtreacle/

Twitter: https://twitter.com/trippingtreacle

Follow her SPMS and HSCT journey through Youtube: https://www.youtube.com/channel/UCnqkX6oYTSzfbm7pj_lWSCw/videos

 

Don’t forget to click here for your FREE GIFT! (Check your Facebook messenger after clicking) 

22. I feel blessed to have Fibromyalgia

22. I feel blessed to have Fibromyalgia

October 9, 2019

Sandy Bista drops by to discuss all things Fibro. We discuss the importance of mindset when you have a chronic illness because if you don’t have a strong mindset you won’t necessarily live a happy life where you achieve your goals. Sandy also tells us about how she had to go to India from Australia to get a diagnosis of Fibromyalgia after her doctor in Australia told her she ‘wouldn't have Fibro because she was too young’. 

 

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Sandy tells all about her diagnosis process, how fibro is diagnosed, what Fibro feels like and the stigma that unfortunately comes with it. How does she cope with running an events business with her sister whilst fighting Fibromyalgia? Sandy discusses her coping tips she’s developed. 

 

Finally, her biggest dream is to create a community of people who can be open about their struggles whether it be with mental health, or fibromyalgia or anything. That is a safe, happy place where people can share their concerns and be listened to. Somewhere where their story really matters. 

Connect with Sandy here: 

Good Vibes Events: https://www.goodvibesevents.com.au/events

Instagram: Instagram.com/Happimindset 

Facebook: https://www.facebook.com/Happimindset/

 

Join the ENabled tribe:

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Want a FREE GIFT? Reduce your symptoms without taking extra meds. Click here: bit.ly/enabledebook 

 

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21 I wore an eye patch to my shop and just pretended to be a pirate with Dara Shashoua

21 I wore an eye patch to my shop and just pretended to be a pirate with Dara Shashoua

October 2, 2019

Dara drops by from ByZantine Design to discuss everything MS, what she’s learnt since having the illness and tells us about some ‘hacks’ she’s picked up since diagnosis. We discuss the important topic that is ‘normal business hours’ not being inclusive to members of the chronic illness community. Why can’t there be more flexibility with a ‘normal working day’ in a business? We discuss the importance of a morning and evening routine when you have a chronic illness and the especially important-making of your bed! 

 

We also discuss what it was like for her to open her first store whilst having her first MS symptoms and trying to battle those around hospital appointments, finding staff and negotiating numbness. 

 

If you’re watching this interview on Youtube you may spot Fergus, her ‘paw-sitive’ 4 legged companion! (he’s gorgeous!) 

 

Want a shout out on the podcast? Click here to pledge $5 and get free perks! > http://bit.ly/enabledsupport or leave a rating and review :)

 

Want to manage your symptoms without taking extra meds for free? Click here: bit.ly/enabledebook 

 

Connect with Dara at https://byzantinedesign.com.au/

Or Insta: @byzantine_design

 

Or go to A chronic entrepreneur: 

https://achronicentrepreneur.com

 

Facebook: https://www.facebook.com/achronicentrepreneur/

Insta: https://www.instagram.com/achronicentrepreneur/

 

Join the ENabled tribe:

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Want a shout out on the podcast? Click here to pledge $5 and get free perks when you become our patreon! > http://bit.ly/enabledsupport or leave a rating and review :)

20. Conor Devine: Anxious man to Ironman

20. Conor Devine: Anxious man to Ironman

September 25, 2019

We chat to 7.5x Ironman Champion Conor Devine to get the lowdown on his adventures with Multiple Sclerosis, neurologists, a plant based diet, managing a business, kids and oh yeah, competing in the biggest challenge a person can do - the IRONMAN CHALLENGE. This extraordinary warrior defies the odds everyday using food and exercise as his medicine. 

 

Conor is an author with two incredible books, ‘Attitude is everything’ detailing his journey with his diagnosis and ‘Ironmind: against all odds’ detailing his journey getting to his first ironman challenge. 

 

We talk a lot about Conor’s incredible plant based diet and how he handles social events. How does he make fruit and veg interesting enough for not only himself to have each day but for two young children too. 

 

Want to manage your symptoms without taking extra meds for free? Click here: Free digital download book

 

Want a shout out on the podcast? Click here to pledge $5 and get perks! > http://bit.ly/enabledsupport or leave a rating and review :)

 

Connect with Conor Devine at www.ConorDevine.com

Search for him on social media

 

Join the ENabled tribe:

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Want a shout out on the podcast? Click here to pledge $5 and get perks! > http://bit.ly/enabledsupport or leave a rating and review :)

14. Scott Mills - Radio 1 DJ ‘My mum couldn’t run for a bus’

14. Scott Mills - Radio 1 DJ ‘My mum couldn’t run for a bus’

September 22, 2019

Scott Mills reveals some interesting truths about his experiences with invisible illness including the time he accidentally diagnosed his ex-assistant Becky whilst live on air. We chat about the power of staying positive and how to achieve things you never thought you could. We also talk about the time he dressed up as a crab on Strictly Come Dancing and starred in his own musical.

Get a shout out in a future episode by becoming an ENabled Hero! Click here: bit.ly/enabledhero and click 'become a patreon' 

Listen to Scott Mills live on Radio 1 Monday-Thursday 1pm-4pm and as he does the official chart show on Friday 4pm-7pm. 

 

Catch up on previous episodes of the Scott Mills show on the BBC website: https://www.bbc.co.uk/programmes/b006wkt4/episodes/player

 

Or listen to all of Scott’s show (without the music) on his podcast including Innuendo Bingo, prank calls, Chris’s stories, listeners’ dilemmas, Real Or No Real and stupid games. Listen on the BBC website or click here: https://www.bbc.co.uk/programmes/p02nrv1j/episodes/downloads

 

Get a free digital download to reduce your symptoms without taking more medication! Click here: bit.ly/enabledebook 

 

Join the tribe of warriors:

Search Facebook: ENabled Warriors 

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Get a shout out in a future episode by becoming an ENabled Hero! Click here: bit.ly/enabledhero and click 'become a patreon' 

 

Stay #ENabled